It's no secret that life's been a bit of a rough trot here, lately. Part of that is due to circumstances in my life right now/recently, part of it is not having medication that works properly, and another part is not having a large enough support network offline.
Whatever the reasons, though, the end result is the same: I've been struggling for a while, and things aren't getting better on their own. After yet another bout of what's being termed "severe self harm", my doctor last week decided to push for me to be seen at the free mental health clinic again. I told myself I wouldn't allow myself to hold out too much hope for a better outcome than last time, I told myself that I would be okay if/when nothing came of it.
Everyone else was so sure something would come of it. Surely. Surely, they had to see that I wasn't making it on my own now. It's been just under a year since I was closed off the books, a year since I did DBT. I've been using my skills, even this blog itself is proof of that. I fight every day to be okay. Surely they had to listen now. I started to let my hopes rise. And then I was given an intake appointment.
So I began to get more invested in the outcome. I began to believe that I had a chance at getting real help again. And then the call didn't come when I expected it.
I felt let down, but I told myself that maybe they were just busy. Maybe I misinterpreted what Intake had said, that I'd got it wrong and that they would call at a later date. A few days after I had originally expected the call, I was about to head out when my mobile rang.
"Hi C, it's [old case manager] here from mental health."
My heart skipped a beat. This was the case manager I'd worked with prior to DBT; the one I'd worked really well with and trusted. I thought she might be calling to say she'd be my case manager again.
"I just wanted to let you know what the Intake team have decided about your case. Now, you've done DBT. You clearly don't want to stop self harming, there's nothing more we can do for you. You know there's no miracle cure, medication isn't going to fix you. We have decided not to take you on."
I was gutted. Crushed. The crushed hopes were bad enough alone, but to have them crushed like that by [old case manager] was like being told by Santa Claus that he wasn't even going to bother leaving you coal. A few minutes of silence followed where I fought my tears before she added insult to injury with,
"What did you even expect to come of this? What do you want?"
"I... I don't know. I-"
"Exactly. So, bye then. Good luck with everything."
I was hurt. Betrayed. Crushed. Gutted. Afraid. For a little while I was even furious. Not just angry but actually furious! How could they? I have fought so hard for so long. I try so hard, I have made so many changes. My feelings were a confused jumble of negative emotions and I cried fairly hard at first. I pulled myself together and left for my appointments, but the emotions didn't go away. They're still right there, because this is a big hurt.
It got bigger when I went to report back to my doctor and found that mental health had got there first and read him the riot act about how manipulative Borderlines are. My formerly supportive doctor greeted me with "do you even want to stop self harm? How much?" then proceeded to tell me again that there is no miracle cure, and told me that since I have done DBT mental health are not interested in wasting their time or mine.
I am tired of being told that there is no miracle cure. I am not looking for one! I'm not afraid to put in the hard work, I've been doing that. It's not working (enough). I know medication makes a difference for me, when it works. I know that. Why won't anybody in a position to do anything about it listen to that?
Dear mental health professionals,
Please, stop assuming that because I happen to have a label with a bad rap, I fit what that label means to you. Please stop assuming that wanting medication that works for me is synonymous with "I want a miracle cure". Please stop assuming that because I'm struggling to stop self harm it means I don't want to. Please stop assuming that I have manipulated my GP into advocating for my treatment. Please just stop making harmful assumptions about me!
I'm asking for help, not a cure. If I didn't have the BPD label, you would be falling all over yourselves to help me. Your labels are supposed to be there to help, not hinder, my treatment.
And now, since mental health is again a non-option, we're back to square one. Where do I go from here? It's so tempting to give up - all the professionals have, why shouldn't I?
Because when I give up, there'll be no chance for it to get better. And because I deserve better than that. I am getting a psychologist referral, and I will take my 6-12 free sessions and do what I can with that. It's better than nothing.
And so I go on putting one foot in front of the other and doing my best to get through each day however it comes. Imperfectly, certainly, but until I can move (something that I can't do until I receive the money from my settlement over my knee which is currently held up due to an error) it's my best option.
Challenge and cheerleading statements:
* Things are not as hopeless as they seem. This isn't forever.
* This situation does not reflect my value.
* I deserve better than to give up on myself.
Take care of yourselves until next time, and may we all find our own small fences along the way.
Thursday, February 17, 2011
Turbulent Waters: I'm Really Not After A Miracle!
Labels:
borderline personality disorder,
bpd,
dbt,
emotions,
mental health,
rejection,
self harm
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ReplyDeleteYour statements at the end are so powerful and so true!
ReplyDeleteI'm sorry that they did this to you. ((hugs))
Their attitude is seriously messed up.
You deserve more. You are of high value. You are strong.
You have to see it from their point of view - if after all that help you're still not much better, why would they invest more time and money in you? They've already invested a lot in you and it didn't do a whole lot, so they are now giving other people a chance. Don't go playing the victim.
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